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 Morg 
Admiral (Administrator)
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Joined: Apr 20, 2002
Member#: 57
Posts: 428
Location: San Francisco, CA
     
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 Posted:
Fri Jul 27, 2012 10:47 am Post subject: Jonelle |
 
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Istagi:
While I am not a religious man, I will keep you and Jonelle in my thoughts and prayers. I know how hard of a struggle this situation is for you, and as one who lost his partner of 6 years to brain cancer, I share the grief, pain, and suffering that you must be going through right now.
Please, keep us posted as to her condition, what the doctors say, and if there is anything at all that we can do to make this time any easier on you, please, let us know.
Keeping you in my heart!
--
James
_________________
“Without music, life would be a mistake.”
― Friedrich Nietzsche, Twilight of the Idols |
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da1e
Cadet 1
Joined: Mar 09, 2012
Member#: 32709
Posts: 1
Location: S. Illinois
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Posted:
Fri Jul 27, 2012 11:22 am Post subject: |
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Istagi,
We don't know each other, but my heart goes out for you and your wife. I've seen people survive much worse then what you are describing, so I feel confident saying "it will get better and she will recover 100%".
G'luck & prayers for you both.
-Dale
_________________
Without falling, there is no fear of heights.
Without nearly drowning, there is no fear of water.
Without crashing, there is no fear of speed.
Without trying, there is never fear. |
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LadyInque
Captain
Joined: May 20, 2005
Member#: 10281
Posts: 2224
Location: Eastern Massachusetts
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Posted:
Fri Jul 27, 2012 12:46 pm Post subject: |
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Good news, Istagi. It sounds like your signature line may prove true yet again! |
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 molossus
Admiral (Administrator)
Joined: Aug 09, 2005
Member#: 11167
Posts: 3308
Location: Warsaw & once in a blue moon Szczecin (Poland)
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Posted:
Fri Jul 27, 2012 1:08 pm Post subject: |
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Thanks for sharing good news, Istagi! I hope everything will go as smooth as possible.
_________________
<i>"The piano keys are black and white,
But they sound like a million colors in your mind"</i>
(from "Spider's Web" by <a href="http://katiemelua.com/music/#KatieMelua">Katie Melua</a>)
Avatar is from work of art by Drew Struzan |
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 anya
Commander
Joined: Mar 02, 2006
Member#: 13601
Posts: 522
Location: France
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Posted:
Mon Jul 30, 2012 4:33 am Post subject: |
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Istagi, I'm so sorry to learn such bad news.
My thoughts go to your wife.
My aunt and an old lady friend of my mother had a breast cancer and they recovered perfectly I wish all the best for you dear wife.
_________________
my SF saga (novels in french!): https://tinyurl.com/PerleDeRubis |
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 Istagi
Lieutenant Commander
Joined: May 15, 2004
Member#: 6652
Posts: 303
Location: ZZ9 Plural Z Alpha
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Posted:
Mon Jul 30, 2012 11:01 am Post subject: |
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Thanks for all the well wishes. right now she is most upset about not being able to go to JW but is adamant that I go.
today we meet with the surgeon and schedule the procedure to remove the 3 tumors. she should go under the knife later this week or early next week.
also filling out paperwork for AFLAC. We are gonna milk that duck for all we can. ducks have nipples right?
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AveD
Lieutenant
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Joined: Feb 08, 2009
Member#: 24386
Posts: 105
Location: Syracuse, NY
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Posted:
Mon Jul 30, 2012 11:08 am Post subject: |
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thanks for the update, Istagi. I am keeping
her in my thoughts & prayers. |
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Istagi
Lieutenant Commander
Joined: May 15, 2004
Member#: 6652
Posts: 303
Location: ZZ9 Plural Z Alpha
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Posted:
Tue Jul 31, 2012 4:37 pm Post subject: |
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and now the news.
Jonette and David attended a meeting with the initial surgeon yesterday. we were given pretty much the same information but that is good a second hearing cleared up a lot for us.
so now we discovered that we will also need to meet with a plastic surgeon for reconstructive surgery.
Jonette has decided to go with a double mastectomy and reconstruction. she met with the plastic surgeon today and now they two surgeons need to coordinate their schedules.
Jonette will go in, have the breasts removed and reconstructed in the same operation. It will require 1 night in the hospital and then a month of recovery.
still no date for the procedure.
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anya
Commander
Joined: Mar 02, 2006
Member#: 13601
Posts: 522
Location: France
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Posted:
Wed Aug 01, 2012 5:11 am Post subject: |
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The way you speak of your wife, she seems so brave!
_________________
my SF saga (novels in french!): https://tinyurl.com/PerleDeRubis |
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maddy
Lieutenant Commander
Joined: Jun 25, 2003
Member#: 2207
Posts: 452
Location: Houston, TX
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 alien_avatar
Captain
Joined: Oct 28, 2006
Member#: 16007
Posts: 1342
Location: Berlin
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Posted:
Wed Aug 01, 2012 1:22 pm Post subject: |
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Double masectomy... didn't expect *that*. 
But I was thinking... maybe Jonette *can* accompany you to the JW concert?
If the operation is in early August, with only one night in hospital; add a month of recuperation time... maybe she could go.
After all, you're not traveling to some place in the middle of nowhere, but to another large city that has such things as doctors and hospitals in case an emergency happens.
Even if it is *your* dream to attend the concert and not hers; originally she was planning to go with you.
Maybe it would get her mind off of things for a little bit?
I know nothing about breast cancer and the treatments involved, so just in case (as is likely) that I'm talking out of my a$$, I want to apologize if I'm being insensitive and/or just plain stupid.
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"Welcome to the paranoia club; cheapest fees in the universe and membership lasts forever."
- Peter F. Hamilton, The Evolutionary Void |
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Istagi
Lieutenant Commander
Joined: May 15, 2004
Member#: 6652
Posts: 303
Location: ZZ9 Plural Z Alpha
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Posted:
Wed Aug 01, 2012 5:42 pm Post subject: |
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alien, she has already asked me to have Cantus take her place.
she is not sure she can handle all the walking and activities. she wants me to go and will take some quiet time for herself.
you are not being stupid or an ass. she will come with me next year.
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Istagi
Lieutenant Commander
Joined: May 15, 2004
Member#: 6652
Posts: 303
Location: ZZ9 Plural Z Alpha
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Posted:
Thu Aug 02, 2012 9:16 am Post subject: |
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D day is set.
Jonette goes in for surgery on Sept 5th. she is wavering between single or double mastectomy. I will support whatever decision she will make. Recovery will take at least 2 weeks. I will be there for her to make sure she rests but also make sure she gets out of the house a bit. I am thinking of short walks, picnic lunches, drives in the mountains, maybe a movie or two, that kind of stuff.
Chemo will probably start in November we will not know what kind or for how long till it is determined if and how far the cancer has spread in her lymph nodes, only surgery can determine that. I pray that it has not spread. The ductile cancer is relatively low risk but the lobular tumor is extremely suspect.
The lobular cancer is Her2nu active, that was until recently an almost certain death sentence but there is a gene therapy that is designed to target cancer that is her2nu positive. all 3 tumors are hormone positive so those are good things.
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Istagi
Lieutenant Commander
Joined: May 15, 2004
Member#: 6652
Posts: 303
Location: ZZ9 Plural Z Alpha
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Posted:
Sat Aug 04, 2012 8:13 am Post subject: |
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so more bad news for Jonette delivered yesterday.
more tumors were found in the other breast. Looks like she has no choice other than double mastectomy. she was already leaning that way but this just made it official and not negotiable.
it hit her pretty hard yesterday. she would cry and then laugh about a shirt that she wants. it says. "Yes they are fake, my real ones tried to kill me."
surgery date is still set for Sept 5th.
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Istagi
Lieutenant Commander
Joined: May 15, 2004
Member#: 6652
Posts: 303
Location: ZZ9 Plural Z Alpha
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Posted:
Thu Sep 13, 2012 4:17 pm Post subject: |
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bad news today.
Pathology report came in. there were tumors in the lymph nodes on the right side. The initial pathology during the surgery missed them. Left side was clear.
that means.
6 weeks of daily radiation treatment Monday through Friday
a year of taking Herceptin
and a full course of Chemo.
Jonette is not pleased and would probably be falling down drunk if she were not on pain meds.
we are both going out tonight and have pie. I may decide to drink heavily.
If Jonette loses her hair I will shave my head as well.
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